Published Paper Details:

Background: Chronic kidney disease is a major health issue around the globe due to its increasing prevalence. Caregivers of patients with CKD are often required to take on multiple responsibilities and tasks while caring for patients. Caregiver burden typically manifests as high rates of psychological distress, mental health diagnoses, fatigue, sleep disturbances and suicide attempts. Resilience is a construct that concerns the human being's capacity to respond positively to the adverse situations an individual faces, even when these pose a potential risk to his/her health or development. Research Question: 1. What is the level of caregiver burden on primary caregivers of chronic kidney disease patients? 2. How resilient are primary caregivers of patient with chronic kidney disease? Objectives: 1. Assess the burden of caregivers of patients with CKD. 2. Assess the resilience among caregivers of patients with CKD. 3. Find the correlation between burden and resilience of caregivers of patients with CKD. 4. Find the association between burden of care givers with demographic variables. 5.Find the association between resilience of caregivers with demographic variables. Methodology: The research design used for this study was descriptive correlational study. The research approach used in this study was Quantitative research approach. In this study, population refers to the caregivers of patients with chronic kidney disease undergoing hemodialysis at ASTER MIMS Hospital, Calicut. The sample size is 100. vii Result: The study findings showed that caregivers of CKD patients undergoing hemodialysis experienced varying levels of burden. Among the participants, 43% reported no to mild burden, 45% had mild to moderate burden, 10% experienced moderate to severe burden, and 2% had severe burden, with a mean ZBI score of 1.71. In terms of resilience, the majority (67%) of caregivers exhibited normal resilience, while 32% demonstrated low resilience and only 1% reported high resilience, with a mean BRS score of 1.69. A Pearson correlation analysis revealed a moderate, negative, and statistically significant relationship between burden and resilience (r = -0.396, p < 0.01), suggesting that higher caregiver burden was associated with lower resilience. Analysis of associations showed that burden was not significantly related to most demographic and clinical variables. Also resilience was significantly associated with place of residence (p = 0.023) and current treatment (p = 0.042), while other variables showed no significant association. viii Discussion: The findings indicate that nearly half of the caregivers experienced mild to moderate burden, reflecting the physical, emotional, and social demands of caring for CKD patients on hemodialysis. This aligns with previous studies where caregivers often reported moderate burden, influenced by the chronic and demanding nature of dialysis treatment. Despite the burden, most caregivers in this study maintained normal resilience, though a considerable proportion still demonstrated low resilience, pointing to a need for interventions that strengthen coping mechanisms. The negative correlation between burden and resilience suggests that as stress and caregiving responsibilities intensify, caregivers' ability to adapt and cope diminishes. Interestingly, caregiver burden showed no significant association with socio-demographic and clinical characteristics. However, resilience was influenced by contextual and treatment-related factors such as place of residence and current treatment modality, highlighting that environmental support and medical management may play a role in enhancing caregivers' coping abilities. Overall, the findings emphasize the importance of targeted support strategies, such as counselling, educational programs, and community-based resources, to reduce caregiver burden while fostering resilience.